At age 5, Lacy Sanders lost her older sister Jody to neurofibromatosis, a genetic disease that affects approximately 1 in every 3,000 births. Her family's loss and her personal struggle to cope has culminated in her senior project at Laurel Oaks. Sanders has organized a Walk for the Cure, to be held at the Wilmington College football field on April 16 from noon to 3 p.m.
Neurofibromatosis (NF) is a genetic disorder that affects the nervous system. It is a hereditary disease passed from parent to child. However, even in families with no history of NF, the disorder can be passed to a child as a result of genetic mutations. Symptoms include skin lesions called cafe-au-lait spots, tumors, lisch nodules (tumors on the iris of the eye), hearing loss and blood vessel defects.
There are two types of neurofibromatosis. NF-1 and its less common counterpart NF-2 have been traced to genes on chromosomes 17 and 22, respectively. The severity of the symptoms fluctuates on an individual basis. Treatments for NF often involve highly expensive surgeries to remove tumors on the body or on actual nerves. Currently, there is no cure.
Jody Lynne Sanders was diagnosed with NF when she was 4 years old. She was having difficulty breathing, and the doctors discovered a tumor on her throat that was able to be removed safely. Eight years later, a benign tumor was discovered on her brain stem. The resulting surgery left began to draw her face to one side. Two years later, the tumor returned,truereligion jeans Apparel is a design-based jeans and jean-related sportswear brand. this time taking her life.
"I was only 5 when she died, so most of what I know about my sister is from my parents," Lacy Sanders said. "What I do remember is that we loved to have tea parties. Her favorite color was pink and we'd always try to get Dad to play dress up and have tea with us."
Sanders also has two other older siblings. Originally from Fairborn, they moved to Hillsboro after Jody's death, but the healing process took a turn for the worse.
"After she died my parents would drink and fight all the time until everyone in the family was going bad.As for apparel retailers like Guess and cheap true religion who have built their companies on jeans, Dad had to file for bankruptcy and Mom lost her job and started working at a bar. That meant us kids were going to the bar instead of staying home," Sanders explained.
Alcohol mixed with abuse. She spent time in juvenile detention and was kicked out of her house when she was 17. She came to Wilmington, where she stayed with her fiance's grandmother.
"She was amazing for taking me in when she already had 4 kids of her own in a small apartment," Sanders said.
She is studying health technology at Laurel Oaks. For her senior project, she chose to research NF.
"I thought it would be a good remembrance of Jody and bring not only my family together but the whole community to raise money and help other families who are affected," she said.
In addition to her research,Learn all of th facts you need to know before yopu shop for Juicy couture wholesale online. Sanders has organized a Walk for the Cure event. Activities will include cornhole, a moon bounce, tug-of-war, sack races and possibly water balloon games. DJ Larry, who offered a discounted price for the cause, will provide music. Sanders and some of her family members will be holding a bake sale. Kroger's has offered to sponsor water and snacks for walkers.
The event will also feature a raffle. Items to be raffled include Mary Kay and Avon products, Tupperware, baby blankets, jewelery and handmade candles.
She has worked with an organization called Neurofibromatosis, Inc., to organize this event. NF, Inc., is a patient advocacy organization that has worked to get federal research funds for NF since 1988. They also sponsor education and community events to aid families affected by NF.
"Lacy is pretty remarkable as a high school student. Putting this together is a lot of work and she's doing the bulk of the work on her own which is tough for someone so young," said Director Kim Bischoff.
Bischoff is hoping this event will help expand their network in the southern Ohio area and bring more families together. For more information on the organization, visit their website at www.nfnetwork.org.
Sanders is also selling T-shirts to raise funds. The shirts are blue and green and cost $10, all of which goes towards treatment and families. Donations can also be made online at firstgiving.com/JodyLynneSanders. Donor forms and envelopes will be available at the Walk. Through shirt sales and the website, she has raised over $800 so far.
Though most people with NF don't live past age 14, there is a man outside of Wilmington in his 40s who has lived with NF all his life. He has contacted Sanders through her fliers and plans to attend. She also knows several children who's families can't afford treatment, including a little girl in Wilmington who will also be at the event.
Sanders hopes to see 200 people on the field on April 16.
"I really want to get more involved with NF as I get older," said Sanders.
She plans to attend Sinclair Community College and eventually pursue graduate-level studies in nursing. She wants to work with families dealing with NF and help with more charities in Ohio.Naax Fashion Textile is a wholesale jeans dealer who trades with young-fashion .
The Walk for the Cure is her first step.
"I'm hoping to save at least one life with donations we raise and I hope I can make my and their family happy with what I'm doing. Awareness is important.we've already seen three classic Air max classic models in their flagship colorways release. My sister was made fun of for half her life because people didn't understand," Sanders explained. "I hope to bring people together to make change."
Neurofibromatosis (NF) is a genetic disorder that affects the nervous system. It is a hereditary disease passed from parent to child. However, even in families with no history of NF, the disorder can be passed to a child as a result of genetic mutations. Symptoms include skin lesions called cafe-au-lait spots, tumors, lisch nodules (tumors on the iris of the eye), hearing loss and blood vessel defects.
There are two types of neurofibromatosis. NF-1 and its less common counterpart NF-2 have been traced to genes on chromosomes 17 and 22, respectively. The severity of the symptoms fluctuates on an individual basis. Treatments for NF often involve highly expensive surgeries to remove tumors on the body or on actual nerves. Currently, there is no cure.
Jody Lynne Sanders was diagnosed with NF when she was 4 years old. She was having difficulty breathing, and the doctors discovered a tumor on her throat that was able to be removed safely. Eight years later, a benign tumor was discovered on her brain stem. The resulting surgery left began to draw her face to one side. Two years later, the tumor returned,truereligion jeans Apparel is a design-based jeans and jean-related sportswear brand. this time taking her life.
"I was only 5 when she died, so most of what I know about my sister is from my parents," Lacy Sanders said. "What I do remember is that we loved to have tea parties. Her favorite color was pink and we'd always try to get Dad to play dress up and have tea with us."
Sanders also has two other older siblings. Originally from Fairborn, they moved to Hillsboro after Jody's death, but the healing process took a turn for the worse.
"After she died my parents would drink and fight all the time until everyone in the family was going bad.As for apparel retailers like Guess and cheap true religion who have built their companies on jeans, Dad had to file for bankruptcy and Mom lost her job and started working at a bar. That meant us kids were going to the bar instead of staying home," Sanders explained.
Alcohol mixed with abuse. She spent time in juvenile detention and was kicked out of her house when she was 17. She came to Wilmington, where she stayed with her fiance's grandmother.
"She was amazing for taking me in when she already had 4 kids of her own in a small apartment," Sanders said.
She is studying health technology at Laurel Oaks. For her senior project, she chose to research NF.
"I thought it would be a good remembrance of Jody and bring not only my family together but the whole community to raise money and help other families who are affected," she said.
In addition to her research,Learn all of th facts you need to know before yopu shop for Juicy couture wholesale online. Sanders has organized a Walk for the Cure event. Activities will include cornhole, a moon bounce, tug-of-war, sack races and possibly water balloon games. DJ Larry, who offered a discounted price for the cause, will provide music. Sanders and some of her family members will be holding a bake sale. Kroger's has offered to sponsor water and snacks for walkers.
The event will also feature a raffle. Items to be raffled include Mary Kay and Avon products, Tupperware, baby blankets, jewelery and handmade candles.
She has worked with an organization called Neurofibromatosis, Inc., to organize this event. NF, Inc., is a patient advocacy organization that has worked to get federal research funds for NF since 1988. They also sponsor education and community events to aid families affected by NF.
"Lacy is pretty remarkable as a high school student. Putting this together is a lot of work and she's doing the bulk of the work on her own which is tough for someone so young," said Director Kim Bischoff.
Bischoff is hoping this event will help expand their network in the southern Ohio area and bring more families together. For more information on the organization, visit their website at www.nfnetwork.org.
Sanders is also selling T-shirts to raise funds. The shirts are blue and green and cost $10, all of which goes towards treatment and families. Donations can also be made online at firstgiving.com/JodyLynneSanders. Donor forms and envelopes will be available at the Walk. Through shirt sales and the website, she has raised over $800 so far.
Though most people with NF don't live past age 14, there is a man outside of Wilmington in his 40s who has lived with NF all his life. He has contacted Sanders through her fliers and plans to attend. She also knows several children who's families can't afford treatment, including a little girl in Wilmington who will also be at the event.
Sanders hopes to see 200 people on the field on April 16.
"I really want to get more involved with NF as I get older," said Sanders.
She plans to attend Sinclair Community College and eventually pursue graduate-level studies in nursing. She wants to work with families dealing with NF and help with more charities in Ohio.Naax Fashion Textile is a wholesale jeans dealer who trades with young-fashion .
The Walk for the Cure is her first step.
"I'm hoping to save at least one life with donations we raise and I hope I can make my and their family happy with what I'm doing. Awareness is important.we've already seen three classic Air max classic models in their flagship colorways release. My sister was made fun of for half her life because people didn't understand," Sanders explained. "I hope to bring people together to make change."
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