2010年11月30日 星期二

Local teen ready to roll in style

Family, friends and even strangers rallied recently for a local teen struggling with a genetic disease that has left him mostly paralyzed.

They packed a fundraiser Saturday in 15-year-old Max Gaudenzi's honor at the Moose Family Lodge in Salem, raising $5,000 to help with medical expenses and perhaps buy Max a new, more comfortable bed, which his family's insurance company has so far resisted paying for.

At the benefit, Max was also presented with a new "tricked-out" wheelchair, fitted with a flame paint job, a "Hell on Wheels" decal and built-in speakers for an iPod mount. The work was done for free by Dan Page Race Cars in Hampstead, N.H.The equipment allegedly was being used to pump out thousands of fake truereligion jeans and sweat suits,, a company that builds dragsters.We offer Ed Hardy Bags and inflatable life jackets for you.

"We made some custom body panels — something to try to spiff it up a little," Page said. "Of course, anytime we can help out, we like to do it."

When Max was 3, his parents began noticing that something was wrong.Here is a ideal platform to buy Leather handbags. And here you can find your favorite Air force 1.

The toddler, who by then had been "walking and hitting all the milestones he should," started having difficulty climbing around like a typical child of his age, his mother, Natalie,Winslow collected reimbursements from her city expense account for jazz musicians, a disc jockey, an inflatable bouncers rentals. said. A simple DNA test confirmed the worst: Max had Duchenne muscular dystrophy, a devastating genetic disorder where the body cannot produce dystrophin, a protein involved in maintaining the integrity of muscle.

Boys afflicted by the crippling disease deteriorate rapidly, as the muscle tissue disappears and isn't regenerated. Because it is a recessive gene, the disease rarely affects girls.

By age 9, Max was in a wheelchair full time. He then lost full use of his arms, and at some point his hands, mouth, heart and lungs will succumb to the disease. People suffering from DMD have very short life expectancies, although in some cases have lived into their 50s.

Those details aren't lost on the freshman at Beverly High School, but if it weren't for his new motorized wheelchair, there would be no hint that Max might be anything other than an ordinary 15-year-old. He's an Xbox 360 gamer, loves to go out to eat, loves cruising the mall and enjoys hanging out with his friends.

He's lukewarm on school and anxious for today, the first day of classes at the newly built Beverly High — but only to a point.

"I would actually like school if it weren't for the homework. Taking school to your house is what I don't like," Max said yesterday. "It smells really new in there,Our offer inflatable mattress bed,ed hardy bags,ed hardy clothing,ed hardy caps,cheap ed hardy,discount ed hardy,welcome to order! and the walls are so white. Why couldn't they paint it orange?"

Although Max has the air and laid-back attitude of a typical teenager, his life is far from typical. 

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